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Eksperci apelują: pacjenci z ciężkim AZS potrzebują dostępu do terapii biologicznej

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Dupilumab to jedyny zarejestrowany na świecie lek biologiczny przeznaczony do leczenia atopowego zapalenia skóry. Terapia tym preparatem jest dostępna w większości krajów Unii Europejskiej. W Polsce lek nie znalazł się jednak na liście refundacyjnej. Eksperci apelują o zapewnienie dostępu do tej terapii osobom z ciężką postacią AZS.

Dupilumab jest przeciwciałem monoklonalnym. Blokuje działanie białek IL-4 i IL-3, które przyczyniają się do wywoływania objawów atopowego zapalenia skóry, a także astmy czy przewlekłego zapalenia nosa i zatok przynosowych. W badaniach klinicznych nad lekiem wykazano, że może on poprawić stan skóry, zmniejszać swędzenie a także zmniejszać ból, depresję i niepokój. Preparat wpływa również na poprawę snu.

Dupilumab jedyną szansą dla chorych z ciężkim AZS

Prof. Joanna Narbutt, kierownik Kliniki Dermatologii Dziecięcej i Onkologicznej Uniwersytetu Medycznego w Łodzi, podkreśla, że dupilumab w dużej części przypadków jest efektywny i ma dobry profil bezpieczeństwa.

– Wprowadzenie tego leku jak najszybciej na listy refundacyjne otworzy nowe życie przed naszymi pacjentami – podkreśla specjalistka.

Hubert Godziątkowski, prezes Polskiego Towarzystwa Chorób Atopowych, w rozmowie z PAP dodaje, że dupilumab jest obecnie jedyną szansą dla chorych z ciężkim atopowym zapaleniem skóry.

Refundowany w Polsce lek na AZS nie zaspokaja potrzeb wszystkich pacjentów

W Polsce dla pacjentów z atopowym zapaleniem skóry refundowany jest jeden lek – cyklosporyna. Prof. Joanna Narbutt zaznacza, że nie zaspokaja on potrzeb wszystkich pacjentów. Zgodnie z rekomendacjami, jak wyjaśnia ekspertka, cyklosporynę można stosować maksymalnie 2 lata. Hubert Godziątkowski dodaje, że u wielu pacjentów z ciężką postacią AZS refundowane w Polsce leki nie zawsze dają pozytywne efekty. Ponadto po ich odstawieniu choroba niejednokrotnie wraca ze zdwojoną siłą.

Wniosek o objęcie dupilumabu refundacją został złożony pod koniec 2019 r. – poinformowała PAP Monika Chmielewska-Żehaluk, dyrektor komunikacji firmy Sanofi w Polsce.

Ministerstwo Zdrowia informuje, że Prezes Agencji Oceny Technologii Medycznych i Taryfikacji zarekomendował refundację dla dupilumabu pod warunkiem obniżenia kosztów finansowania leku przez NFZ. Postępowanie jest aktualnie na etapie oczekiwania na przygotowanie decyzji.

AZS jest dużym obciążeniem finansowym, zarówno dla pacjenta, jak i dla państwa

Zgodnie z szacunkami Polskiego Towarzystwa Chorób Atopowych przeciętnie w ciągu roku pacjent z AZS wydaje około 10 tys. zł na swoją chorobę. Jeżeli schorzenie ma ciężki przebieg, koszt może wzrosnąć nawet do 13 tys. zł rocznie. W 2018 r. koszty hospitalizacji i opieki nad chorymi z AZS wyniosły 26 mln zł. Do tego dochodzą koszty zwolnień chorobowych i świadczenia rentowe w wysokości 31,3 mln zł.

– Wprowadzając do refundacji nowoczesną terapię skuteczną w leczeniu ciężkiego AZS, te wszystkie koszty można znacząco ograniczyć – zaznacza Huber Godziątkowski.

AZS jest chorobą nieuleczalną

AZS jest chorobą nieuleczalną, która charakteryzuje się występowaniem skórnych zmian zapalnych. Są one bolesne i nawracające, pojawiają się na zgięciach łokci, kolan oraz na twarzy i szyi. Pacjenci cierpiący na atopowe zapalenie skóry zmagają się z silnym świądem skóry, który jest uporczywy, często trudny do opanowania. Z tego względu chorych niejednokrotnie dotyka bezsenność, zmęczenie czy rozdrażnienie. Choroba wiąże się również z występowaniem powikłań, takich jak zakażenie skóry, astma, zaćma czy zapalenia spojówki mogące prowadzić do upośledzenia wzroku.

Źrodło: PAP, Sanofi

Przeczytaj także: Czy termowizja może być skuteczna w leczeniu ran trudno gojących się w warunkach domowych?

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869 thoughts on “Eksperci apelują: pacjenci z ciężkim AZS potrzebują dostępu do terapii biologicznej

  1. Witam.,
    Mój syn pokonał bardzo silne azs dzięki lekowi nalcrom. Lek jest niedostępny od wielu lat w Polsce, do niedawna był dostępny w Czechach oraz Słowacji. Teraz można go kupić jedynie we Włoszech- kraju produkcji. Lek nie ma skutków ubocznych, jest tani. Życie naszej rodziny po 7 latach walki, niespania, diet wróciło do normy. Czy mają Państwo wiedzę dlaczego jest pomijany w leczeniu AZS, jest wycofywany z produkcji? Został uznany za nieskuteczny (znam wiele historii gdzie zadziałał tak jak u nas) Uważam, że powinni się Państwo zająć tym tematem.

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